Lyme Patient Advocacy Project

Reference Documents


General References

Position Paper for Lyme Patients Call on Congress

CQ Researcher Lyme Disease v.23-40

August 2012 Senate Hearing - Lyme Disease: A Comprehensive Approach to an Evolving Threat


From AIDS to Lyme: Will We Let History Repeat Itself?

Arrogance and Ignorance: A Catastrophe for Lyme Sufferers

A Military Man’s Experience with Lyme Disease

Social & Economic Impact

Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic

Severity of Chronic Lyme Disease Compared to Other Chronic Conditions

Economic Impact of Lyme Disease (Emerging Infectious Diseases)


The Infectious Diseases Society of America Lyme Guidelines: A Cautionary Tale about the Development of Clinical Practice Guidelines

Two-Tiered Lab Testing for Lyme Disease—No Better Than a Coin Toss

Findings of Richard Blumenthal’s Anti-Trust Investigation of IDSA

CDC Refuses to End Preferential Treatment of IDSA Lyme Guidelines in Response to Citizen Petition


Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases

Antibiotic Retreatment of Lyme Disease in Patients with Persistent Symptoms: A Biostatistical Review of Randomized Clinical Trials

Lyme Disease May Linger for 1 in 5 Because of “Persisters”

Culture Evidence of Lyme Disease in Antibiotic Treated Patients Living in the Southeast


Lyme Patients Call on Congress for Decisive Action on Epidemic

Citizen Petition: End Preferential Treatment of the IDSA Guidelines for Lyme Disease